Petition to Accelerate Approval for PKAN treatment.

tinassburgers:

Hey guys, there is a disease called PKAN (Pantothenate kinase-associated neurodegeneration), and there is a drug treatment (RE-024) it’s already approved in Europe, but it’s going to take time to get the FDA to approve the drug in the US. Unfortunately there are people that need this treatment right now. Including the Kulsrud brothers.

If they get 100,00 signatures on this petition they will accelerate the approval process so these boys and others like them will get the treatment that they need. Right now they only have 9,000 and it will only take a minute to sign. Please sign it!

1 week ago   11   Reblog

illkim:

Entire Class: *forgets to do homework*

Teacher: Well I guess I won’t count it

image

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You just learned a bit about me:

  • I am a cuddler
  • I am a morning person 
  • I am an only child
  • I am currently in my pajamas
  • I am currently pregnant
  • I am left handed
  • I am a little shy around everyone at first
  • I bite my nails
  • I can be paranoid at times
  • I enjoy country music
  • I enjoy smoothies
  • I enjoy talking on the phone
  • I have a car
  • I have/had a hard time paying attention at school
  • I have a hidden talent
  • I have a pet 
  • I have a tendency to fall for the “wrong” guy/girl
  • I have all my grandparents
  • I have been to another country
  • I have been told that I have an unusual sense of humor
  • I have broken a bone 
  • I have bathed someone
  • I have changed a diaper
  • I have changed a lot over the past year
  • I have friends who have never seen my natural hair color
  • I have had major/minor surgery
  • I have killed another person
  • I have had my hair cut within the last week
  • I have mood swings
  • I have no idea what I want to do for the rest of my life
  • I have rejected someone before
  • I like the taste of blood
  • I love Michael Jackson
  • I love sleeping
  • I love to shop
  • I own 100 CDs or more
  • I own and use a library card
  • I have more than 100 books in my room
  • I read books for pleasure in my spare time
  • I sleep a lot during the day
  • I watch soap operas on a regular basis
  • I work at a job that I enjoy
  • I would get plastic surgery if it were 100% safe, free of cost, and scar-free
  • I am currently wearing socks
  • I am tired
  • I love to paint/draw/sketch/sculpt/write
  • I consume at least one alcoholic drink every month

I have/had:

  • Graduated high school
  • Ridden every ride at an amusement park
  • Collected something 
  • Gone to a concert
  • Helped someone
  • Spun turn tables
  • Watched four movies in one night
  • Been broken up with
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  • Been in a car accident  
  • Been in a tornado
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  • Written a 10 page letter
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  • Stolen books from the library
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  • Fired a gun
  • Been in a school play or production 
  • Been fired from a job
  • Taken a lie detector test
  • Swam with dolphins
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  • Written poetry
  • Read more than 20 books a year
  • Gone to Europe
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  • Used a coloring book over age 12
  • Had surgery
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  • Had a hamster
  • Dyed your hair
  • Had something pierced
  • Gotten straight A’s
  • Your parents sent you to a shrink
  • Been handcuffed

My hair is naturally the color:

  • Light brown
  • Brunette
  • Dark brown
  • Blonde
  • Black
  • Dirty blonde
  • Strawberry blonde/Ginger
  • Multicoloured

My eyes are:

  • Brown
  • Blue
  • Grey
  • Green
  • Hazel
  • Light brown
  • A combination of things

I am:

  • Male
  • Female
  • Other

Some of my biggest fears are:

  • Spiders/other insects 
  • Dying
  • Doctor/Dentist appointments
  • Hospitals
  • Needles
  • Disease
  • Being alone in the dark
  • Heights 
  • Small spaces 
  • Oceans/large bodies of water
  • Holes
  • Large animals
  • Small animals
  • Open spaces
  • Lightning

I have:

  • A friend with benefits
  • A laptop in my room
  • A television in my room
  • Good grades (kinda)
  • My own car
  • Married parents
2 weeks ago   9666   Reblog

make me choose | candicesandwich asked me
dylan sprayberry or liam dunbar

2 weeks ago   2137   Reblog

emmasneverland:

make me choose:

emmaduckling asked: ouat ladies in storybrooke or/and ftl

2 weeks ago   4425   Reblog

rumplestiltskin:

OUAT Men doing the Ice Bucket Challenge

2 weeks ago   12236   Reblog

graphic battle: kira yukimura appreciation

argents-allison vs. edwardrockbells

2 weeks ago   1670   Reblog
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